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Patient Support
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| Complied information and online links about financial aid, products and medication support for liver patients.
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| Financial Aid Programs
- TIGER Family Aid Program
- Medicare Consumer and beneficiary information about the Medicare program.
- COTA - The Children's Organ Transplant Association provides fundraising assistance for children needing life-saving transplants and promotes organ, marrow and tissue donation. 1-800-366-2682.
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National Transplant Assistance Fund National Transplant Assistance Fund (NTAF) is a not-for-profit resource whose mission is to help raise funds for transplant and catastrophic injury patients by providing compassionate support, education and expertise to them, their families and communities. NTAF provides fundraising ideas and guidance for patients raising money for uninsured medically related expenses, $1,000 challenge grants for eligible patients and educational information regarding organ/tissue donation ------- (800) 642-8399.
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PPARxFL.org, a Web site designed to help low-income, uninsured Florida residents get free or discounted brand-name medicine. 888-477-2669
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Merck Patient Assistance Program - drug programs call their 800 number 800-727-5400
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WeHelpMeds was created to assist you in finding Medication Assistance programs. Information about hundreds of programs that can help you obtain your medication free or at greatly discounted prices. These programs change on a regular basis; Constantly searching for new programs and monitoring existing ones. Qualifications vary, but most are based on income and lack of outpatient prescription coverage. 801-235-9224
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Needy Meds - is the place to learn about patient assistance programs and other programs designed to help those who can't afford their medicines. No calls -- information source only.
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Wheelchair Foundation - sponsors the delivery of a wheelchair to those who cannot afford one. (877) 378-3839.
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Lilly Cares Patient Assistance Program provides free medication through physicians to needy patients. 1-877-795-4559,
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Circle Lending - reduces the financial and emotional risk associated with personal loans. the way to make privat loans work. 1.800.805-2472.
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Stadtlanders At Stadtlanders we witness the miracle of transplantation everyday
through the 10,000+ transplant recipients we serve. As the first pharmacy
dedicated to serving the needs of the transplant community, Stadtlanders
provides individuals with medication delivery and insurance billing
services nationwide. The Social Services Department offers financial
and emotional counseling as well as resource information. To learn
more about Stadtlanders services call 800-238-7828.
CLASS Financial aid for families of pediatric liver patients. Typical types of financial assistance include a parent’s food allowance during their child’s hospitalization, telephone service for a child awaiting transplant, or transportation expenses for a clinic visit. Contact us for information on how to apply for a grant. 1-877-679-8256 .
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| Patient Travel Programs
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Other Patient Resources
- TRIO - Transplant Recipients International Organization
- TIGER Fund Caregiver Information
- Chronimed - Distributes pharmaceuticals and provides specialized patient management services nationwide for people with long-term chronic conditions, including HIV/AIDS, organ transplants and diseases treated with injectable medications. Patient Specialist at 1-800-888-5753
- Novartis Transplant Information The site for transplant patients, their families, and their friends. This site provides you with information and resources to guide you through your transplant journey.
- Lehey Liver Clinic provide comprehensive care for people with diseases of the liver as well as people waiting for a liver transplant and those who have been transplanted.
- Organ Procurement Organizations National listing
- California Pacific Medical Center California Pacific's transplant outcomes are consistently ranked at the top among U.S. transplant centers. Publish the Liver & GI Review
- Freecycle.org Lists of local unused free items or request for items from those in need. It's a grassroots movement of people who are giving (& getting) stuff for free in their own towns.
- Caregivers Marketplace - free, group purchasing service providing Cash Back and Discounts on over 1000 health care products for family caregivers and a targeted marketing program for manufacturers and providers
- Georgetown University Transplant Institute The center is affiliated with the Georgetown Transplant Institute, a program that offers liver, kidney, kidney/pancreas and pancreas transplantation. Established in 1998, the institute has performed hundreds of transplants since that time, experiencing dramatic growth and earning widespread respect. The institute's surgeons have performed more than 180 liver transplants to date.
- UNOS Liver Transplant Links
- Fujisawa Healthcare Information on Prograf and other patient resources
- Thomas E. Starzl Institute (Pittsburgh Transplantation Institute) The leading resource dedicated to helping people from around the world with end-stage organ failure, the Thomas E. Starzl Transplantation Institute was established in 1985
- Roche Patient Assistance Program was one of the first in the industry, setting the standard for assisting patients in need since the early 1960's. Roche is a pioneer in providing our drugs for free to patients who lack prescription coverage and the means to pay for the medications they need. In fact,
- The Dietary Supplement Education Alliance ™ (DSEA ™) is an ambitious partnership created to promote the responsible use of vitamins, minerals, herbs and specialty supplements. The following summarizes the mission, structure and activities of this unique coalition of scientific, education and industry groups:
- People's Medical Society - Links to helpful medical inforamtion sites.
- Life Extension Foundation - The Life Extension Foundation has a 23 year history of introducing life saving medical discoveries and funding scientific research.
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Patient Information Services (and medical data technology)
- Hospital Compare - This tool provides you with information on how well the hospitals in your area care for all their adult patients with certain medical conditions. This information will help you compare the quality of care hospitals provide. Hospital Compare was created through the efforts of the Centers for Medicare and Medicaid Services (CMS) and organizations that represent hospitals, doctors, employers, accrediting organizations, other Federal agencies and the public.
- Personal Health Journals - Various books which help store and organize your medical records and your account of your story
- WebMD Health Manager - Quick access to your medical information. WebMD provides this service for 6 months free.
- Med Info Chip - Carry this information chip with you. Life saving information in emergency situations. Easily updated on any Laptop or PC. Conveniently stored in your wallet on your key ring.
- VeriMed - quickly provides healthcare professionals with a patient's name and pertinent personal information when he or she can’t speak, can’t remember, or is unconscious. The device is the first and only FDA-approved patient identification system using implantable RFID technology.(Go to TIGER Fund TPAP)
- Care Tools - medical record keeping
- Alliance of Claims Assistance Professionals - find a personal patient advocate.
- Patient Advocate Foundation - advocacy group for life threatening conditions
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Discussion Groups
- Transplant Buddies members generally are preparing for, or living with, various types of organ transplant and donation experiences. We want to share our experiences and our empathy, to support and inform you as you prepare for transplant, and resume a new life after transplant surgery or organ donation.TIGER Fund Mentor Support (under construction) Email us for more information
- SupportPath.com Leading you to 1000's of resources, is the premier directory for support-related online communities & message boards, chats, organizations and information on over 300 health, personal, and relationship topics
- Caregiver Discussion ForumNational Donor Family Council support and message boards
- CLASS Kids Discussion GroupFamily Friendly Fun offers family fun and family health resources to enhance the health and fun of family life for families with disabilities.
- Google Liver Transplant News Group
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| Artificial Liver & Liver Health Products - Updates |
- HepaLife publicly-traded under symbol HPLF (OTC BB), is a development stage biotechnology company focused on the research, development and eventual commercialization of technologies and products to treat various forms of liver dysfunction and disease.
- Algenix A lead product in development, the LIVERX 2000 SYSTEM, is an external liver support system that incorporates porcine liver cells. It is designed to treat acute and chronic liver failure by temporarily providing essential liver function to those patients hospitalized with liver failure.
- On-Time RX - Designed by a pharmacist for anyone with a Palm™ handheld computer and a need to take pills routinely... Transplant patients - Click here to download a customized "Be an ORGAN DONOR" Trial version. Beam this special version of On-Time-Rx® to all Palm-users to promote Transplant Awareness.
- Dietary Supplement
Education Alliance™
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| Rehabilitation & Disability Support |
- Wheelchair Foundation - Matching funds provide and deliver a wheelchair to a child, teen or adult without mobility, freedom and often hope.
- National Registry of Rehabilitation Technology Supplies (NRRTS) Affiliate Links
- AbilityHub
is an Assistive Technology related web site for people with a disability who find operating a computer difficult, maybe even impossible. AbilityHub is a firm starting point for finding information concerning Assistive Technology.
- Abledata
A national database of information on more than 17,000 products that are currently available for people with disabilities.
- National Seating & Mobility, Inc. NSM is the only national company dedicated exclusively to specialized re/habilitation technology products and services for severely physically challenged individuals.
- RehabTool.com
Proposes leading edge assistive and adaptive technology products and services for people with disabilities and special needs.
- Rehab Central
Rehab Central provides the resources you need to find rehabilitation products and assistive devices.
- U.S. Rehab
An elite alliance of NRRTS-registered Rehabilitation Technology Suppliers working together to educate payer and referral sources on the true values of high-tech re/hab
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